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Caregiving Challenges
CBD
has a profound effect on movement. People
with CBD may experience tremor, myoclonus (sudden, jerky movements),
dystonia (involuntary stiffening or contraction of an affected
limb), and apraxia (inability to make the affected limb follow
commands). Other symptoms include rigidity, slowed movements,
and difficulty expressing speech. Some people experience
an alien hand/limb phenomena in which the affected limb moves involuntarily. For
example, some people after grasping an object will have difficulty
letting it go. These changes impact
the person’s ability
to manage day to day tasks, such as dressing and walking.
Cognitive changes may include short term memory
loss and difficulty with complex planning and organization. The
person with CBD may exhibit language
difficulties and
have trouble with speech expression and finding the right word. It
is not uncommon for people with CBD to suffer from depression.
Strategies for Coping
Certain
medications may be helpful in diminishing
the effects of tremor, myoclonus and rigidity. Other medications
may be helpful for mood.
Physical therapy exercises may be useful to maintain
mobility and range of motion of stiff joints, as well help with
mood. An Occupational therapist may be helpful in evaluating
for adaptive and assistive equipment.
Exercise is recommended to increase strength
and flexibility. People may prefer to work with a Physical
therapist or Personal trainer. A Physical therapist can
evaluate the need for assistive devices such as canes or walkers.
A speech therapist can teach safer
swallowing techniques to
help prevent problems with choking and aspiration. Foods
can be prepared in a way to minimize choking and aspiration. For
example, cutting food into small pieces and drinking thick liquids
can be helpful for some people.
The physical needs involved in caring for a person with CBD can
be tremendous. It may be necessary to ask
for help from
family or friends or to hire someone to help with caregiving tasks. It
is vital for the family caregiver to take care of their own physical
and emotional health.
Safety and Environment
Home safety can be fostered
by keeping pathways clear of objects such as low furniture, cords
and area rugs that are difficult to see without looking down.
An Occupational therapist can perform a home safety check to
make recommendations for assistive equipment and modifications.
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