Tag Archives: Huntington disease

The Bed

The man falls out of the bed. It breaks. This is not the first bed to drop under the weight of his flailing bones and thrashing limbs. The bed is now braced by a two-by-four, and it is only a matter of time that it will go down. His balance is poor and he falls out of the bed. This happens all the time. It is not his fault that he has destroyed three beds, two couches, countless toilets seats and an array of nearby furniture. He crashes and trips into things. His body outwits his mind. It throws him around, shamelessly. Read more

If Grief is the Price of Love, Life with Mary was a Deal.

Mary and Dick had almost 50 years walking arm-in-arm in marriage and in life when she began holding on tighter than she ever had. Her pace slowed. She pulled on her husband’s arm. It was a subtle change that would give way to other curious happenings around their home. She was the consummate organizer, planning trips that would take them all over the world, managing the bills, the meals, the social activities. She was an education champion and elementary school office manager. Now, everything was taking more effort. Bills went unpaid. Things gone missing. She couldn’t plan international trips. She was frustrated.  She had fits of anxiety and anger, uncharacteristic of her naturally easy-going way. Read more

10th Annual Huntington Disease Research Symposium

With special thanks to Lundbeck, Inc. we were able to host about 120 guests for two sessions of informative talks on the latest advances in laboratory and clinical Huntington disease (HD) research. Read more