Talking to other people with similar experiences can help reduce your stress, frustration and isolation. Plus, other caregivers often have helpful advice on what worked for them.

Because Creutzfeldt-Jakob disease is a rare disease, many people have never heard of it. Educate others about what it is to be a caregiver and the need to find a cure for CJD.

Read and hear the stories of other CJD caregivers. Maybe someone has been through a similar path or found the humor or positive moment you need right now.

Telling your story can help you feel better and connecting with others through similar experiences can provide comfort in knowing that you are not alone.