Talking to other people with similar experiences can help reduce your stress, frustration and isolation. Plus, other caregivers often have helpful advice on what worked for them.
Help improve the diagnosis of CJD Learn more.
Help improve the diagnosis of CJD Learn more
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Community and Support
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Find Support
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Get Involved
Because Creutzfeldt-Jakob disease is a rare disease, many people have never heard of it. Educate others about what it is to be a caregiver and the need to find a cure for CJD.
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Personal Stories
Read and hear the stories of other CJD caregivers. Maybe someone has been through a similar path or found the humor or positive moment you need right now.
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Share Your Experience
Telling your story can help you feel better and connecting with others through similar experiences can provide comfort in knowing that you are not alone.