Being prepared when you come in for an office visit can help you get your concerns addressed as well as a more accurate diagnosis.
Help improve the diagnosis of CJD Learn more.
Help improve the diagnosis of CJD Learn more
Related Articles
Featured
Loading
View as
If someone you know is experiencing any of the signs and symptoms of CJD, you may want to talk to their doctor about your concerns and observations.
-
Talking With Your Doctor
-
Tests
Certain tests can help your doctor rule out or support a prion disease diagnosis.
-
Genetic Counseling
If you are concerned about hereditary prion disease, you may want to meet a genetic counselor to help assess your risk of a genetic disorder and weigh the medical, social and ethical decisions surrounding genetic testing.
-
Help Your Doctor Help You
Because CJD is a rare disease, most doctors have little, if any, experience diagnosing or managing CJD. There are resources available for you to share with your doctor.
-
Getting a CJD Evaluation at UCSF
The UCSF Memory and Aging Center has consulted on the evaluation of people diagnosed with rapidly progressive dementia from all over the world. Physicians referred more than 200 people to our CJD team in the past year. If your doctor thinks you may have CJD or another rapidly progressive dementia, our specialists can review your medical records and see if a clinic visit is appropriate.