Communication Tips

If someone you know is experiencing any of the signs and symptoms of Creutzfeldt-Jakob disease (CJD), you may want to talk to their doctor about your concerns and observations.

A good relationship and clear communication with your doctor will result in the best care for your loved one. Here are some tips to help make talking to your doctor more effective:

• Be prepared. Several days before your appointment, use these worksheets to help you track medical history, health changes, your concerns and current medications. When your appointment time comes, arrive early to fill out forms, bring two copies of your completed worksheets so you can go over it together and bring a pen and paper to jot down notes.
• Speak up. Doctors tend to prioritize diagnostic information and core concerns early in the office visit. Mention your most important concerns early in the visit to be sure you have time to cover them. It might be helpful to use the list in the appointment worksheets.
• Listen. Sometimes it feels like a doctors appointment is over in a blink of an eye and all you walk out with is the blurred memory of a meeting and a prescription. Take notes or bring a tape recorder and ask the doctor if she wouldn't mind your recording the visit to help you better remember the information you discuss.
• Ask questions. Don't hesitate to ask for clarification if your doctor uses unfamiliar words or gives confusing instructions. Any recommendations you get need to fit your personal, cultural and financial situation so that you can put them into practice. Don't leave the office without understanding everything the doctor tells you.