Both the UCSF Neurology Clinic and the CJD/RPD Research Program at the UCSF Memory and Aging Center are located on the Parnassus Avenue campus in San Francisco.

Individuals interested in being evaluated for CJD, rapidly progressive dementia, or related disorder need to take certain steps.

Because CJD is a rare disease, most doctors have little, if any, experience diagnosing or managing CJD. There are resources available for you to share with your doctor.

If you are concerned about hereditary prion disease, you may want to meet a genetic counselor to help assess your risk of a genetic disorder and weigh the medical, social and ethical decisions surroun

Certain tests can help your doctor rule out or support a prion disease diagnosis.

Being prepared when you come in for an office visit can help you get your concerns addressed as well as a more accurate diagnosis.