Help improve the diagnosis of CJD Learn more.

Help improve the diagnosis of CJD Learn more

Overview Content

Talking With Your Doctor

  • Communication Tips
  • Starter Questions You Might Ask Your Doctor

Communication Tips

Starter Questions You Might Ask Your Doctor

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Here are some questions you might want to ask your doctor or nurse. Feel free to add your own questions.

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Communication Tips

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If someone you know is experiencing any of the signs and symptoms of Creutzfeldt-Jakob disease (CJD), you may want to talk to their doctor about your concerns and observations.

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Help Your Doctor Help You

Because CJD is a rare disease, unfortunately most doctors will never see a person with prion disease, let alone have experience diagnosing or managing CJD. It may be helpful to:

Genetic Counseling

  • What is a genetic consultation?
  • What happens during a genetic consultation?
  • What is genetic testing?
  • What do the results mean?

What to expect in your consultation

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A genetic consultation provides information, addresses a patient’s specific questions and concerns, and offers support.

During a consultation, a genetics professional will:

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What is genetic counseling?

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A genetic consultation is a health service that involves evaluation of an individual or family for one or more of the following:

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