Choosing to join a research study is an important personal decision, and we hope this section will help you better understand the research process. It is always a good idea to discuss research participation with your doctor, and the study team will also describe the study in great detail before you agree to participate.
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Why Participate in Research?
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Find a Clinical Trial or Research Study
UCSF's Memory and Aging Center (MAC) actively conducts research and clinical trials to improve the diagnosis and treatment of FTD. Your participation helps us reach these goals. If you aren't in the San Francisco Bay Area, the National Institute of Health (NIH) maintains listings across the United States.
Follow the links below to find out more about trials going on right now. If one of them looks interesting, talk with your doctor or contact the study team to see if it is appropriate for you.
- Amyloid PET in Alzheimer's Disease (AD), Frontotemporal Dementia (FTD) & Primary Progressive Aphasia (PPA)
- Clinical Trial of Memantine for Behavioral Variant Frontotemporal Dementia and Semantic Dementia
- Creation of Stem Cells from Patients with FTD
- Eye Movement Control in Adults
- fMRI of Autonomic Physiology in Frontotemporal Dementia (FTD) and Alzheimer's Disease (AD)
- Frontotemporal Dementia: Genes, Images and Emotions
- Healthy Aging
- Measuring Altered Social Behavior in Neurodegenerative Disease
- Measuring Attention & Executive Function
- Measuring Executive Function
- New Approaches to Dementia Heterogeneity
- The Association for Frontotemporal Degeneration (AFTD) lists information about clinical trials for FTD as well as specific studies that are funded by AFTD or the National Institutes of Health and its related entities. Read more
- US National Institutes of Health online search tool of federally and privately supported clinical trials conducted in the United States and around the world. Read more
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What Happens to My Data?
Generally, a single person's data is combined with the data from many other people to form groups with similar characteristics. This group data is then analyzed so that conclusions or discoveries can be made and shared with the community. Follow the links below to read some of the recent publications about frontotemporal dementia.