It is possible to place people with frontotemporal dementia in assisted-living facilities or nursing homes. While the younger age of the patients can be a deterrent to staff working in these settings, explanation of symptoms and disease progression will help make your case. Inservice trainings on managing behavioral symptoms can help staff members work more effectively with bvFTD patients in particular. Speech therapists may be able to help patients with SD or PNFA.
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Resources
- American Academy of Hospice and Palliative Medicine: a professional organization for healthcare providers dedicated to expanding access of patients and families to high quality palliative care and advancing the discipline of Hospice and Palliative Medicine through professional education, support, research and public policy.
- Find a hospital in your area that provides palliative care (USA only): an online tool from the Center to Advance Palliative Care that locates palliative care centers near you.
- Locate Hospice Providers in the US and Canada: an online search tool to find hospice providers near you. Organized by the Hospice Foundation of America.
- Hospice Organizations: descriptions, contact information and links to organizations that advocate hospice care. Organized by the Hospice Foundation of America.
- California Advocates for Nursing Home Reform: a statewide nonprofit advocacy organization that is dedicated to improving the choices, care and quality of life for California’s long term care consumers. Provides comprehensive long term care information regarding Medicare and Medi-Cal. Also provides an online search engine for nursing homes in California.
- Hospice and Palliative Nurses Association (HPNA): a professional nursing organization dedicated to promoting excellence in hospice and palliative nursing care.