Rules Regarding Use of Names

It is a violation of University policy and our UCSF MAC Human Studies approval to link subjects' names and scores in any way. ALL INDIVIDUAL DATA MUST BE KEPT/FILED BY UCSF MAC SUBJECT ID NUMBER, not name or subject's initials. Should a second unique identifier be necessary as a cross-check, we recommend you use the subject's date of birth. Any communication (with the UCSF MAC or anyone else) should use subject ID numbers, never names.

All investigators must abide by the Committee on Human Research and HIPAA guidelines regarding the securing of subject names. In the CHR application, indicate how you will preserve confidentiality (your approval is dependent on this).

Deviations from the use of UCSF MAC assigned subject ID numbers must first be discussed with the Data Management and Biostatistics Core (Joe Hesse or Leslie Ross). Such deviations create an inability to pair individual project's data with UCSF MAC Core data.