RPD Evaluation at UCSF

Individuals interested in becoming a research participant for studies of CJD, rapidly progressive dementia or a related disorder need be screened for eligibility. To expedite this process, please follow the steps listed below.

  1. Complete the Potential Research Subject Intake Form. This form can be printed and mailed along with your medical records (see below).
  2. Please request a copy of your medical records related to your illness (inpatient and outpatient) from your primary care physician and other health care providers (e.g., neurologist, psychologist). These medical records should include lab results, diagnostic reports, clinical notes and imaging. If possible, please send all MRI images on a CD. Records can be sent to:
    Attn: Dr. Michael Geschwind
    University of California, San Francisco
    Memory and Aging Center MC: 1207
    675 Nelson Rising Lane, Suite 190
    San Francisco, CA 94143
  3. If you are referred by a physician, please have the physician send us a referral letter along with your medical records. The referral letter should describe why you are being referred and a synopsis of your condition.

Once we review your medical records, a research coordinator will call you and either set up a research visit or refer you to a different specialist. During this process, we ask that you do not contact multiple members of our research team as doing so can significantly delay the review process.

Location

Phone Numbers:
415.476.2901 RPD clinic coordinator
415.353.2057 Main clinic phone
415.476.0213 Fax

UCSF Memory and Aging Center Clinic:
1500 Owens Street, Suite 320
San Francisco, California
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CJD/RPD Clinical Research Program at the UCSF Neurosciences Clinical Research Unit (NCRU):
Sandler Neurosciences Center
675 Nelson Rising Lane, Suite 130
San Francisco, California
cjdstudies@memory.ucsf.edu
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Interpretation Services

Language should not be considered a barrier for patients and their families seeking evaluation for cognitive and/or behavioral changes. The UCSF Medical Center provides interpreters for medical visits. Interpreter services are free of charge. Interpreters are available for Chinese (both Mandarin and Cantonese), Vietnamese, Spanish and Russian. The Memory and Aging Center also includes staff from diverse cultural backgrounds.