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Frequently Asked Questions (FAQ)

Before you or your loved one join a research trial or study, your doctor should talk to you about what it's like to be in a trial and describe the pros and cons of participating. If you are interested, someone from the clinical trial staff will explain the details of the study, risks and benefits, and your rights as a participant, including your right to withdraw from the study at any point. Once all your questions have been answered, they will ask you to sign an informed consent to participate.

Choosing to participate in a clinical trial or research study is an important personal decision. The following frequently asked questions (FAQ) provide detailed information about clinical trials and were modified from the NIH Clinical Trials website, the UCSF Human Subjects Protection Program Website and the National Institute on Aging Alzheimer’s Disease website.

Dick Smith

Dick was a constant walker, and his hands shook much of the time, so getting him to do any kind of art work was always difficult. He walked in a circle around the day care, and as he came by he was handed a paint brush full of paint and asked to paint on the paper. Each time he came by, the color was changed.

I am not an artist, but I do like to paint and do creative things. I would like to paint you a picture, a panoramic landscape, of a wonderful man who has been my husband for 43 years. The colors would be greens, browns, and earth tones, because he loves the outdoors; (nature, fishing, hunting, hiking, running, and all kinds of athletics). There is a bright sun, because he is always smiling and cheerful. No gloominess in this picture. Beneath a beautiful mountain is a stream, running very, very fast, making its mark in the world, just as he did for 36 years working for the same company.

Morgan Fox

In May 2001, after receiving a diagnosis of early-onset Alzheimer's disease, Morgan began working with her close friends and family to remain physically and mentally stimulated. This led to ventures in painting which, as you can see, are a natural venue for her.

Morgan Fox, born in New York, NY in 1946, is a woman with many talents. An avid reader and brillant conversationalist, she has always been known for her cheery disposition.

Emotions

Emotional and behavioral symptoms are common in dementia and can be major sources of stress to patients and their caregivers.

Emotional and behavioral symptoms are common in dementia and can be major sources of stress to patients and their caregivers. Some of the most common emotional and behavioral changes associated with dementia are:

  • Apathy and Indifference—lack of motivation to start new activities and continue old ones, reduced participation in household chores, loss of interest in talking to other people, becoming less affectionate and emotionally expressive.

Impact of Neurological Illness

Speech and language difficulty commonly affects individuals with dementia and other neurological conditions. Patients may experience deficits in the form of verbal expression (i.e., word-finding difficulty) or comprehension (i.e., difficulty understanding speech).

Alzheimer’s disease (AD)

Alzheimer's Disease

Alzheimer’s disease (AD) is a progressive, degenerative brain disease that slowly erodes memory and thinking skills, and eventually even the ability to carry out simple tasks. It is the most common cause of dementia.

What is Alzheimer’s disease?

Practical Tips for Daily Life

Activities of daily living are divided into two major categories. The first, often called instrumental activities, includes more complex types of activities such as paying bills, shopping, managing medications, working and driving. The second category is activities related to personal care and include eating, bathing, dressing, getting in or out of bed or a chair and using the toilet. In the beginning of the disease, the patient will have trouble completing the instrumental, complex activities. As the disease progresses, the person will have difficulty managing the more basic functions and will need help from caregivers.

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