related_caregiving

Family Advisory Council

To promote ideal family and patient-centered care in dementia, the UCSF Memory and Aging Center has created a Family Advisory Council that provides family caregiver input regarding the delivery of clinical care services.

To promote ideal family and patient-centered care in dementia, the UCSF Memory and Aging Center has created a Family Advisory Council that provides family caregiver input regarding the delivery of clinical care services. Topics may include feedback regarding the existing services as well as ideas regarding new innovative programs under development or raising awareness regarding the priorities or unmet needs of families and patients at the MAC. The council is comprised of family caregivers who care, or have cared, for persons with dementia.

Join a Supportive Care Trial

Quality of Life Trials or Supportive Care Trials are research studies to evaluate improving the health, care or quality of life for people, typically without using study drugs or devices. UCSF's Memory and Aging Center (MAC) runs selected supportive trials for people with neurodegenerative disease. Your participation helps us evaluate these interventions. If one of our trials looks interesting to you, please talk with your doctor or contact the study team to see if it is appropriate for you.

Life Enhancing Activities for Family Caregivers (LEAF)

The purpose of this study is to learn more about how a behavioral intervention that aims to increase positive affect can affect stress level, improve mood, and lessen the perceived burden of family caregiving for those who care for a person with dementia.

Summary

Anesthesia

The risk of cognitive decline related to surgery and anesthesia continues to be debated in the scientific literature. Some animal studies suggest that anesthesia may worsen the development of the plaques and tangles associated with Alzheimer’s disease while others identify the surgical procedure itself to be a problem by causing inflammation and release of harmful proteins. Others attribute temporary or permanent cognitive changes to the medications used to manage pain or other complications of being hospitalized. Ultimately, although this is a very active area of research, there are no definitive studies in older humans that prove a causative effect on the brain from anesthesia or provide recommendations on specific choices of anesthesia. Despite this, we hope to be able to identify information that may help our patients with cognitive problems evaluate the risk and make informed choices about surgery and anesthesia.

The risk of cognitive decline related to surgery and anesthesia continues to be debated in the scientific literature. Some animal studies suggest that anesthesia may worsen the development of the plaques and tangles associated with Alzheimer’s disease while others identify the surgical procedure itself to be a problem by causing inflammation and release of harmful proteins. Others attribute temporary or permanent cognitive changes to the medications used to manage pain or other complications of being hospitalized.

UCSF Over 80 Clinic

The staff of the UCSF Over 80 Clinic seek to address the complex dementia care issues commonly seen when caring for the oldest old. This care often requires an in-depth understanding of co-existing non-dementia medical illnesses, medication interactions, and the integrated living environment encountered in care of elders.

The staff of the UCSF Over 80 Clinic seek to address the complex dementia care issues commonly seen when caring for the oldest old. This care often requires an in-depth understanding of co-existing non-dementia medical illnesses, medication interactions, and the integrated living environment encountered in care of elders. In contrast to the clinical priorities for younger patients with cognitive decline, diagnosis is often only a small factor in maximizing outcomes.

Brain Donation

Brain donation provides individuals the opportunity to help others affected by dementia by advancing our scientific understanding of neurodegenerative diseases and healthy aging. We honor the gift of donation and treat donors, their bereaved families, and all tissue with care and respect.

Why donate?

Brain donation provides individuals the opportunity to help others affected by dementia by advancing our scientific understanding of neurodegenerative diseases and healthy aging. We honor the gift of donation and treat donors, their bereaved families, and all tissue with care and respect.

Examining the brain after death is currently the only way to obtain a definitive diagnosis of the underlying causes of dementia. A diagnosis of absolute certainty cannot be made by clinical evaluation alone.

Tips for Hospitalization

Hospitalization of a patient with dementia is a potentially stressful experience often associated with negative outcomes for both the patient and family. The “Partner With Me” (PWM) project was developed to educate and connect healthcare providers with family caregivers of our patients with memory impairment.

Hospitalization of a patient with dementia is a potentially stressful experience often associated with negative outcomes for both the patient and family. The majority of dementia care is provided in the home by family caregivers who have intimate knowledge about the patient’s preferences, schedule, communication and comprehension abilities. The "Partner With Me" (PWM) project was developed to educate and connect healthcare providers with family caregivers of our patients with memory impairment.

Prion Resource Sharing

The Memory and Aging Center encourages and facilitates research and publications by current and new investigators. We are eager to help generate successful proposals, secure funding and publish study results. Resources are provided solely for use in academic, not-for-profit research at recognized educational institutions.

Academic, not-for-profit investigators can request the following resources from the UCSF Memory and Aging Center (MAC):

  • Subjects for research studies
  • Archived data
  • Imaging data
  • Tissue specimens
  • Video clips of behaviors

For details, please see our Resource Sharing page.

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