ppa

primary progressive aphasia

Technology

The LAVA Clinical Research Management System (CRMS) was developed by the UCSF Memory and Aging Center (MAC) to meet the data management needs of a research center with a dynamic and varied set of patient assessment measures and many interrelated research protocols. The system includes a query tool, LAVA Query, which allows principal investigators to create specialized cohorts and generate their own data sets. The system is web-based and can host data for multisite studies.

Data Sharing

As an NIH-sponsored Alzheimer's Disease Research Center, the UCSF Memory and Aging Center (MAC) looks for opportunities to share our resources with investigators of the highest caliber. Investigators may request subjects for research studies from the UCSF MAC. Prior to submitting your application, please consult the Data Management & Biostatistics Core leader, Dr.

Biospecimens

As an NIH-sponsored Alzheimer's Disease Research Center, the UCSF Memory and Aging Center (MAC) welcomes opportunities to share our resources with investigators of the highest caliber. Investigators may request laboratory and biospecimens from the UCSF MAC. Prior to submitting your application, please consult the Clinical Core leader, Dr.

Cohorts

As an NIH-sponsored Alzheimer's Disease Research Center, the UCSF Memory and Aging Center (MAC) looks for opportunities to share our resources with investigators of the highest caliber. Investigators may request subjects for research studies from the UCSF MAC. Prior to submitting your application, please consult the Clinical Core leader, Dr.

Sacha Rood

Social Work Intern

Sacha is a native New Yorker and has lived in San Francisco since 2008. She received her BA degree from University of Rochester in political science, with a minor in French. She worked as an Americorps volunteer at a community health center in New York, NY where she piloted a diabetes and depression collaboration. She then moved to San Francisco and began working at LifeLong Medical Care in diabetes panel management and education. She completed a 200-hour yoga teacher training this past summer and is currently pursuing a Masters of Social Work at UC Berkeley School of Social Welfare. She will be interning at the UCSF Memory and Aging Center until May, 2013 where she is primarily working with families of patients to assist in care planning and resource navigation. She has always had a fascination and passion for neurology and is excited to be a part of the MAC.

Tips for Hospitalization

Hospitalization of a patient with dementia is a potentially stressful experience often associated with negative outcomes for both the patient and family. The “Partner With Me” (PWM) project was developed to educate and connect healthcare providers with family caregivers of our patients with memory impairment.

Hospitalization of a patient with dementia is a potentially stressful experience often associated with negative outcomes for both the patient and family. The majority of dementia care is provided in the home by family caregivers who have intimate knowledge about the patient’s preferences, schedule, communication and comprehension abilities. The "Partner With Me" (PWM) project was developed to educate and connect healthcare providers with family caregivers of our patients with memory impairment.

Eileen Pedersen

Clinical Coordinator

Eileen is a clinical coordinator for the UCSF Memory and Aging Center with a BA degree from Dominican University of California in English.

Alice Hua

Research Associate

Alice graduated from UC Berkeley in 2012 with a BA degree in psychology. While at Cal, she volunteered at the Matthew Walker Sleep & Neuroimaging Lab and Gopnik Cognitive Development Lab, exploring the effects of sleep deprivation on cognitive tasks as well as testing three-year-old's spatial cognition strategies. Alice later joined the Greater Good Science Center where she investigated and published digests on gratitude, mindfulness and empathy. Between classes and lab, she also choreographed hip hop dances, taught free workshops and organized sets to be showcased at the end of each semester.

As a research associate to Drs. Bill Seeley and Virginia Sturm, Alice joined the Memory and Aging Center in August 2012 to examine the social and emotional behavior and network organization of patients of neurodegenerative disease.

In her free time, Alice loves exploring the city and hopes to continue pursuing her passion for dance.

Anna Khazenzon

Research Associate

Anna Khazenzon joined the Memory and Aging Center in July of 2012. She works with Dr. Suzee Lee on neuroimaging studies evaluating the role genetic risk factors play in atypical dementias. She received her BA degree in cognitive science from UC Berkeley in May of 2012. As an undergraduate, she worked in the Walker Lab of Sleep and Neuroimaging, investigating the role of reward in memory using fMRI, and in the Elias Lab of Animal Communication and Behavior, studying courtship plasticity in the male jumping spider. Aside from marveling at the workings of the brain, she enjoys playing minesweeper and eating her vegetables.

Diana Zackey

Research Coordinator

Diana graduated from Yale University in 2006 with a bachelor of arts degree in English. She spent time working in publishing and cooking prior to completing a post-baccalaureate program at the Harvard Extension School and transitioning toward a career in the sciences. During the fall of 2011, she volunteered with a rural health clinic in the Philippines, and she continues to volunteer weekly here in San Francisco with the AIDS Foundation Syringe Access Services. She is very excited to be a part of this dynamic research community and looks forward to learning much more here at the MAC.

Diana is the research coordinator for the Measuring Altered Social Behavior in Neurodegenerative Disease study, which aims to validate measures of social and emotional cognition in neurodegenerative disease patients in order to identify characteristic patterns of altered social functioning.

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