Biomarker Evaluation in Young Onset Dementia from Diverse Populations (BEYONDD)

Summary

  • Study Director: Adam Boxer, MD, PhD
  • Sponsor: National Institutes of Health (NIH)/National Institute on Aging (NIA)
  • Official Study Title: Biomarker Evaluation in Young Onset Dementia From Diverse Populations (BEYONDD)
  • Conditions Studied: Subjective complaints of cognitive, behavioral, or motor changes; mild cognitive or behavioral impairment; healthy aging; early onset dementias

Purpose of the Study

This study is being done to learn what early onset (age <65) impairment or dementia (EOD) looks like in Black, Latinx, Asian American, and other non-White participants. The study doctors also hope to learn whether low-cost methods like online questionnaires, app-based memory tests, and blood tests can be used to identify and diagnose adults with Alzheimer’s disease, frontotemporal lobar degeneration, or other types of EOD in different ethnic/racial groups.

Study Details

BEYONDD is run by a team of study doctors:

Inclusion Criteria:

  • People between the ages of 40 and 64 with memory and thinking concerns
  • Latinx/Hispanic, Black/African American, Asian/Asian American or Pacific Islander adults

What to Expect

Phase 1: Online and “at-home” visits include online questionnaires and tests of memory and thinking, at-home (or location of your choosing) blood draw, tablet-based tests of memory and thinking, and optional smartphone app assessments.

Phase 2: On-site visit includes a clinical evaluation and imaging of your brain.

Phase 3: Results disclosure visit, which can be done at a study site or via telemedicine (video conference) appointment. You may choose which results are given to you.

We encourage you to include a study partner (friend, family, or loved one) with you in any/all phases of BEYONDD, but it is not required.

Payment: You (and your study partner) will be paid for completing each BEYONDD visit. Participants will be paid the following amounts: $20 (for the online visit), $100 (for the “at-home” visit), $200 (for the on-site visit) and $100 for the results disclosure visit). If needed, BEYONDD can reimburse travel expenses of up to $1000 for the on-site visit. Study partners will be paid the following amounts: $20 (for the online visit), $50 (for the “at-home” visit).

Contact Information

If you are interested in participating in this research project or have any questions, please visit our website for more information or contact the BEYONDD team at 1.866.7MY.MIND (1.866.769.6463).