Conversations with Caregivers

Caregiving for someone with dementia requires creative problem-solving and trial-and-error to figure out how to best support, communicate with, and protect the person. Some caregivers have discovered really effective strategies, and we want to share their approaches with you!

The Conversations with Caregivers series of short videos offers practical advice from real family caregivers who care for persons with dementia, a general term for diseases that cause the gradual loss of ability to think, communicate, and live independently. These videos are designed to help viewers manage common caregiving challenges; however, the content may not be applicable to every situation. Please consult a healthcare professional for questions and concerns about your or your loved one’s medical condition.

Members of our team at UCSF collaborated with filmmaker Keith Moreau and three families to produce Conversations with Caregivers. You can watch below or on YouTube. These videos were produced with support from the S.D. Bechtel, Jr. Foundation and Tideswell at UCSF, in partnership with the UCSF Edward and Pearl Fein Memory and Aging Center. They were made possible by the generosity of the families who agreed to be filmed.

Videos

  1. Series Introduction
  2. Acceptance
  3. Activities
  4. Introduction to Support Groups
  5. Support Groups In Action
  6. Balancing Safety & Independence
  7. Meals
  8. Playing Along
  9. Patience & Preparation
  10. Helping with Dental Hygiene

Series Introduction

Acceptance

In this video, caregivers talk about the challenge of accepting that their loved one has dementia. Caregivers describe how changing their perspective on their situation helped them cope and grow through their experience. For more information, please see these resources:

Activities

In this video, caregivers discuss ways they help individuals with dementia stay active and engaged. They share creative ideas for building on things the person likes and finding ways to help the person stay socially connected. They adapt activities to match the person’s abilities and provide praise and encouragement to help the person achieve success. For more information and ideas, please see these resources:

Introduction to Support Groups

In this video, caregivers talk about the benefits of attending support groups. They discuss common fears and misconceptions, as well as practical, social, and emotional rewards, and various group formats available. To find a support group near you, please see these resources:

Support Groups In Action

In this video, caregivers share insights, laughter, and wisdom with one another in a frontotemporal dementia caregiver support group. To find a support group near you, please see these resources:

Balancing Safety & Independence

In this video, caregivers discuss strategies they have employed to keep the person with dementia safe while also respecting their independence. They discuss common risks such as driving, falls, disorientation, and hazards related to eating and cooking. For more information, please see these resources:

Meals

In this video, caregivers share practical tips for a successful mealtime experience. They demonstrate special utensils and techniques for setting the table and organizing the kitchen. They also talk about using verbal and visual cues to help the person eat independently. For more information, please see these resources:

Playing Along

In this video, caregivers discuss how they have learned to communicate more effectively with individuals with dementia. They playfully redirect the person’s attention instead of arguing with them. When the person is upset, they offer empathy and reassurance instead of trying to explain or reason with them. For more information, please see these resources:

Patience & Preparation

In this video, caregivers discuss the efforts they make to ensure day-to-day activities run smoothly. They employ strategies such as following a routine, allowing sufficient time, and having supplies ready in advance. They also communicate with respect, using patience and humor to avoid conflict. For more information, please see these resources:

Helping with Dental Hygiene

In this video, a caregiver describes their approach to making mouth care a comfortable and pleasant experience. They select a time of day when things are calm. They set up their supplies and tell the person what they’re going to do each step of the way.

For more information, please see these resources: