- Study Director: Michael Geschwind, MD, PhD
- Sponsor: CHDI, Inc.
- Official study title: Enroll-HD – A Prospective Registry Study in a Global HD Cohort
- Conditions studied: Huntington’s disease
Purpose of the Study
Enroll-HD is a coordinated worldwide effort by approximately 45 Huntington Study Group (HSG) research centers to collect ongoing information from individuals who are affected by HD and those who are part of an HD family. The HSG is collecting this information in order to learn more about HD and potential treatments and to plan future research studies of experimental drugs aimed at postponing the onset or slowing the progression of HD.
Study Details
Inclusion Criteria: Age 18+, HD+, HD-, non-genetically tested members of an HD family, community controls
What to Expect
Testing: A neurological examination, cognitive testing, surveys, and a blood draw. Optional procedures include an additional blood draw and urine sample, and a family history questionnaire.
The Frequency of Visits: One annual visit
Materials Needed Before Evaluation: None
Costs: No costs will be charged for any of the study procedures. Participants will be provided with a debit card to help with transportation costs.
Contact Information
If you are interested in participating in this study or have any questions, please contact one of the study coordinators:
- Theresa Driscoll at 415.514.0191 or [email protected]
- Julia Glueck at 415.502.7640 or [email protected]