Services
- Autoimmune Encephalopathy Clinic
- Cognitive & Movement Disorder
- Huntington’s Disease & Ataxia Clinic
- Lecanemab
- Over-60 HIV Service
- Over-80 Service
Autoimmune Encephalopathy Clinic
The UCSF Autoimmune Encephalopathy/Encephalitis Clinic specializes in the evaluation and care of patients who are experiencing problems with cognition (e.g., thinking, memory), movement, and/or incoordination possibly due to brain inflammation or rapidly progressive dementia. Our particular focus is on encephalitis syndromes associated with specific antibodies that target brain cells. Such syndromes include reactions against brain cells, brain cellular channels and paraneoplastic syndromes that can result from cancer cells in the body. Our clinicians also evaluate patients with suspected thyroid-associated cognitive difficulty (“Hashimoto’s Encephalitis”) and cognitive trouble associated with systemic inflammatory or rheumatologic diseases.
The clinic offers a multidisciplinary approach with attending neurologists Dr. Michael Geschwind, who is an expert in behavioral neurology, and Drs. Prashanth Ramachandran and Jeffrey Gelfand, who are experts in neuroimmunology from the UCSF Multiple Sclerosis and Neuroinflammation Center, as well as neuropsychologists (who measure cognitive abilities), experienced and caring social workers and nurses, as well as clinic assistants who coordinate laboratory testing. If appropriate, recommendations and possibly implementation of immunosuppressive treatment can be provided. The clinic is committed to the timely evaluation of people with acute syndromes, as well as following up after a hospital discharge and long-term management of these disorders. When appropriate, the clinic also collaborates closely with research efforts advancing precision medicine diagnostics in encephalitis and autoimmune dementia and may offer research opportunities to patients.
Cognitive & Movement Disorder
The UCSF Neurogenetics Cognitive & Movement Disorder Clinic seeks to serve the needs of adult patients with known neurogenetic conditions, as well as patients with neurological conditions of suspected, but unconfirmed, genetic or familial etiology. Examples of conditions that are evaluated in this clinic include adult genetic metabolic disorders, ataxias, mitochondrial disorders, leukoencephalopathies, Huntington’s disease and atypical parkinsonian disorders. Although the clinic focuses on adults, pediatric cases are considered. Our neurologists include Drs. Michael Geschwind, Alexandra Nelson and Cameron Dietiker. Medical records can be sent by mail or may be faxed to the numbers provided on the referral form (see the Make a Referral page). Upon review, patients will be contacted regarding an appointment.
For more information on making an appointment, please see the Memory and Aging Center Clinic.
Huntington’s Disease & Ataxia Clinics
The UCSF Memory and Aging Center (MAC) Huntington’s Disease and Ataxia Clinics provide care to patients and families experiencing and/or at risk for Huntington’s disease (HD) and spinocerebellar ataxias (SCAs), as well as other forms of hereditary or sporadic neurodegenerative ataxia, such as multiple system atrophy (MSA). Our neurologists include Drs. Michael Geschwind, Alexandra Nelson and Cameron Dietiker. The clinics’ interdisciplinary team works with patients and caregivers to improve their lives by creating comprehensive treatment plans. We understand that the challenges of living with HD, SCA or other ataxias can extend beyond the signs and symptoms of the disease, and we work to provide integrated care to our families with these diseases.
The UCSF Movement Disorders and Neuromodulation Clinic (MDNC) also evaluates patients with various movement disorders including ataxia and MSA.
Our experience and expertise led the UCSF MAC HD Clinic to be recognized in 2015 as a Huntington’s Disease Society of America Center of Excellence (HDSA COE), co-directed by Drs. Geschwind and Nelson. In addition, in 2023, the UCSF MAC Ataxia Clinic was also recognized as a National Ataxia Foundation Center of Excellence (NAF COE).
HD and Ataxia Clinic Services
- Genetic counseling & testing
- Symptom management & drug therapy
- Support groups & psychiatric care
- Physical therapy consultation
- Long-term care planning
- Palliative care support
For more information, please call 415.353.2057. To be evaluated in the clinic requires a referral from a physician. Please see the Make a Referral page for information about the referral process.
The UCSF MAC is an active member of the Huntington Study Group (HSG) and the Clinical Research Consortium for Spinocerebellar Ataxias (CRC-SCA). We provide opportunities for participation in several observational and interventional research studies for HD, SCAs and MSA. If you are interested in participating in or learning more about research, please contact us at [email protected].
Other Helpful Resources
HD Resources
- Visit the UCSF MAC Huntington’s Disease and Ataxia Clinic
- The National Institute of Neurological Disorders and Stroke (NINDS) Huntington’s Disease Information Page
- Huntington’s disease support groups through UCSF
- Help4HD
- Huntington’s Disease Society of America (HDSA)
- HDSA support groups
- Huntington’s Outreach Project for Education (HOPES) at Stanford
- Huntington’s Disease Youth Organization
- Family Caregiver Alliance
- Adult Huntington’s disease on the Social Security Administration’s Compassionate Allowances Program
- I Have HD Card – Wallet-sized card that explains the diagnosis of HD
- Huntington Disease Observational Research (Enroll-HD)
- HD Trial Finder
- Clinical trials at UCSF
- ClinicalTrials.gov – a place to learn about clinical study opportunities around the world
Ataxia Resources
- Visit the UCSF MAC National Ataxia Foundation Center of Excellence
- NAF Newly Diagnosed Resource Sheet
- The National Institute of Neurological Disorders and Stroke (NINDS) Ataxia Information Page
- Support Group Listing
- Ataxia Treatment Pipeline
- SCASource – Ataxia research news, directly from researchers to the Ataxia community
- Ataxia Educational Webinars – A series of webinars specifically designed for patients and family members that focus on one ataxia type at a time.
- Ataxia Card – Wallet-sized card that explains the diagnosis of ataxia
- Ataxia Marketplace – A place to discover products that may be helpful to those living with ataxia
- Natural History Study of and Genetic Modifiers in Spinocerebellar Ataxias
- Ataxia-Focused Research Studies
- Clinical trials at UCSF
- ClinicalTrials.gov – a place to learn about clinical study opportunities around the world
MSA Resources
- The MSA Coalition
- What is MSA?
- The National Institute of Neurological Disorders and Stroke (NINDS) Multiple System Atrophy Information Page
- MSA Support Groups (scroll to page 4 for California)
- A note from my neurologist to my other clinical providers
- Travel guide for MSA patients and families
- Strategies for life after diagnosis: advice from patients and care partners
- Music therapy lyric videos
- Rhythmic ReminiscenceTM movement and music program
- Informational conferences and videos for patients and families
- What to Ask When You’re Interested in a Clinical Trial
- MSA Treatment Pipeline
- Clinical trials at UCSF
- ClinicalTrials.gov – a place to learn about clinical study opportunities around the world
Over-60 HIV Service
Advances in HIV anti-retroviral therapies in recent years have allowed for a newly emerging HIV+ population that is aging well into and beyond their 50s and 60s. The Over-60 HIV Service serves patients over the age of 60 with the characteristics of HIV-associated neurocognitive disorders (HAND).
For more information, please call 415.353.2057. For a physician referral, please see the Make a Referral page.
Over-80 Service
The staff members of the UCSF Over-80 Clinic seek to address the complex dementia care issues commonly seen when caring for the oldest old. This care often requires an in-depth understanding of co-existing non-dementia medical illnesses, medication interactions, and the integrated living environment encountered in the care of elders. In contrast to the clinical priorities for younger patients with cognitive decline, diagnosis is often only a small factor in maximizing outcomes. In addition, we focus on maximizing the quality of life for each individual by evaluating co-existing illnesses, potential drug side effects and interactions, and the inter-woven environment frequently encountered by elders. This approach is facilitated by specialist training and expertise in geriatric medicine and an integrative approach to patient management. Medical records can be sent by mail or fax to the numbers below. Upon review, patients will be contacted regarding an appointment.
For more information on making an appointment, please see the Memory and Aging Center Clinic.